My husband, Steve, and I will be heading to the hospital soon to see Maddie, our 16-year-old daughter with cystic fibrosis. She went to Children’s Hospital in St. Louis last Friday afternoon. She has pneumonia and her diabetes got out of control. This was a rough summer for Maddie. It started with her being in the hospital for a week. She wasn’t sick, but the doctors wanted her to get her lung function up. Then she visited her Grandma’s in Illinois and her Dad’s in Pennsylvania.
Maddie admitted that she didn’t want to be held accountable for her health and she was avoiding her problems. She did accomplish one major goal and that was reconciling with her Dad. Maddie will get out of the hospital hopefully on 9/21, and then she’ll be on antibiotics for one more week in which we administer them at home. Maddie is feeling better now. She had been pretty sick, with acute pneumonia as well as going into Ketoacidosis with elevated blood sugars for quite some time. This is pretty rare for a kid with cystic fibrosis, because they usually produce some insulin to prevent this.
Hopefully, going forward, Maddie will take her health more seriously and listen to her body. As her
parents, we will do the same and monitor her more closely rather than just taking her word for what she’s doing. I really don’t want to micromanage her, because I believe she’s old enough to begin taking responsibility for her health, and she needs to learn that now and not later. At the same time, we will ask more questions and check up on her reports and not let her leave for prolonged visits until we trust her ability to take care of herself. I believe I have been a good role model for her, and I will strive to be better every day by loving and accepting myself.
As I say in the other article, Love has a way of healing everything. So for this moment, I say ho’oponopono,
“Whatever part of me created the suffering I see in Maddie, I love you, I’m sorry, please forgive me, thank you.” Please keep Maddie and all of us in your prayers. That is the greatest gift you can give. If you would like to make a donation, we are doing the annual Cystic Fibrosis Bowl for Breath on Saturday, 10/27 for the 14th year running. If you are local and would like to bowl on our team, please contact me. If you’d like to make a donation, please let me know, and I’ll send you a link, in which you can donate on line.
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Thank you so much for your support!
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